Valter
Valter was born in 2016 and is the only one in Denmark with the Mabry syndrome.
His illness presents many challenges such as treatment-resistant epilepsy, lack of muscle tone and frequent infectious diseases.
Valter gets food and drink through his mic-key probe and uses the cross and leg splints (orthoses) when he sits up.
Valter is limited by his cognitive abilities, but he clearly recognizes his family and the people he associates with regularly. He is determined and certainly has his preferences.
Valter loves to take a shower, watch TV and share an ice cream with his older sister.
Magnus
Magnus was born prematurely in August 2016 - 11 weeks early.
This resulted in 2 cardiac arrests, which today means that Magnus suffers from Cerebral Palsy to a severe degree (spastic paralysis), epilepsy and motor impairment.
Magnus sits in a wheelchair and, despite his challenges, is an incredibly fun-loving boy who loves time with his 4 siblings.
He enjoys playing Playstation with his older brother or visiting grandma with his little sister and mom.
Magnus loves strawberries, Kinder chocolate and not least his iPad and TV.
Ziva
Ziva was born 10 weeks early and was first diagnosed with Cerebral Palsy when she was 3 years old. Unfortunately, she forgot to breathe twice in the first few days of her life, when the doctors had to come in and resuscitate her.
Currently, Ziva's main problem is her legs. She cannot walk without a walker and otherwise she is in a wheelchair.
Ziva is a fun-loving girl with a very strong will and sometimes even stubborn. She loves to play with her little sister Ziff, who is just one year younger, and also loves listening to music, doing creative things with her mom and looking at her iPad.
Isabella
Isabella is from January 2018.
She was born by emergency caesarean section due to lack of oxygen. She was then put on cooling therapy for three days, but was diagnosed with Cerebral Palsy (CP) at 7 months old.
Isabella has severe CP but is a cognitively bright girl who will start special school in August 2024.
She enjoys horseback riding, yoga and is an incredibly happy and smiley girl who enjoys socializing.
When VALE Designs meets Isabella for photoshoots, she is a real 'lens louse' who keeps smiling at the camera even when tiredness sets in.
Liana
Liana was born in January 2019.
When she was 1 year old, she was diagnosed with Joubert syndrome, which means Liana has a congenital malformation of the cerebellum.
This gives her balance challenges, she is small for her age and cognitively she is behind.
Right now, Liana is learning how to say monosyllabic words.
Liana loves horseback riding and yoga, is an incredibly shy but very smiley girl and is highly motivated by praise.
Ronja
Ronja was born 6 weeks premature in 2018 and had a chaotic start to life with meningitis, jaundice, septicaemia and NEC for which she underwent emergency surgery.
Ronja was born with Pierre Robin Sequence Syndrome, cleft palate, CRD - ctcf related disorder, which is a genetic disorder of the nervous system, auditory neuropathy, which is a rare form of hearing loss, ataxic cerebral palsy which particularly affects her coordination and balance. In addition, Ronja has impaired kidney function and is therefore often hospitalized as she is also prone to kidney pelvis inflammation.
You'd think Ronja would be knocked out, but she has a spirit that surprises most people. She loves fun and mischief. Things like roller coasters, riding ATVs with daddy, animals and anything pink can put her in a good mood. In fact, it's rare for Ronja to wear a ‘no’ hat. Ronja loves meeting new people. Almost as much as she loves strawberry cake.
Anton
Anton was born in March 2018 and has a congenital brain injury, cerebral palsy and epilepsy. This means that Anton cannot stand or walk. He is also unable to sit on his own and is therefore confined to a wheelchair.
Although Anton has no language, he makes himself understood with his body language to those around him, who are able to read his signals.
Anton has regular check-ups at Slagelse hospital due to his underlying illness.
Anton attends a special school and is a very happy and content boy despite his challenges.
Emma (former model)
Emma was born in 2018 with Schinzel-Giedion syndrome, which causes epilepsy, eating problems and cognitive delay.
Emma died on 27 July 2024. Emma was very special and left a deep impression on those she met. Gentle and grateful and with a very special ability to sense even the small things. Something the rest of us can learn a lot from and that gives us a lot to think about.
Thank you Emma for teaching us so much and thank you for your time as a model for VALE Designs. We will miss you! ⭐️⭐️⭐️
Honouring Emma's memory ❤️
